It’s amazing, you come back from holiday and everyone says how well you look but the turmoil going on inside isn’t the same as the picture that’s obviously painted on the outside. The sunshine did do me the world of good, I now know that if I had a choice I would spend my winter months in Florida. The joint pain decreased significantly to the point I managed to walk, slowly and only short distances but I did it!! This for me was a huge achievement and made me smile whenever I was able to say no to the chair, to walk arm in arm with Andrew once again as husband and wife meant so much. The sadness to return home and within days of the cold weather hitting my skin, the agony was back and so was my carriage.
The biggest issue I had overseas was my Gastroparesis, the constant variation of food did little for my GI system. I persevered through all the pain eating caused with the mindset that I was to gain at least half a stone. I ate everything I possibly could for a woman who is a US size zero, so my portion sizes are small but I tried to ensure the calorific value was high. I struggled with every issue going during my two weeks away and we spent quite a bit of time in Walgreen getting medication 😳 So on my final day we went to our friends house and I got Andrew to get her bathroom scales, this was it, the big test. I jumped on and …. I had gained 1lb! One flaming pound, so we went for lunch and I ate something else knowing this was a waste of time. No matter what I eat, the calories aren’t being transferred into weight, I was pretty gutted but I’m due to discuss with my GI consultant what next.
Then there is my skin tone, my freckles have made an appearance, so for now I look a little less sick. The Vitamin D always helps lift my mood generally at this time of year and gets me through our tough winters. We encountered various stresses and strains during our time away and shortly after our return, sadly this has impacted both my mood and stress levels. It’s causing a rise in pain levels, flare up of symptoms and insomnia, why is life never simple for us?
Since returning despite flaring I have been feeling rough but refused to have bed days. EDS is really getting on my wick now, my patience is running out, I’m fed up with my Doctors indecision, my continual appointments and there never being any improvement. I feel I need to take charge, if I take control of this then I’ve only got myself to blame.
Since getting home we’ve had two concerts, two hospital appointments and a GP appointment …. I’ve only been back ten days !! I will tell you more about what’s going on in future posts but needless to say enough is enough of this constant traveling to and from hospitals, the stress in itself is taking its toll !
So that’s a quick update on what’s going on, Andrew is busy as we head into silly season with parties and Christmas, so I will get to enjoy more quiet evenings with the cats. We can then plan 2016 and hope that it is kinder than this year has been to us.