Living life with a chronic illness is like walking a tightrope, I never know what each day is going to be like, whether I’m going to have a good day or a bad one but I’ve worked one thing out, a lot of it is down to the way I tackle the days.
Most days I wake up feeling like utter crap, I could spend every day cuddled up in bed but honestly it would get me nowhere in life and there is a whole world to see out there and lots of fantastic people to meet. So as long as I take it steady I can generally be out of bed and dressed by lunchtime, planning my day, trying to do things not only for me these days but trying to help out at home.
I’ve also worked out that self pity is worth, jack shit!! (Apologies for my language) I have tried the laying around feeling sorry for myself and it really doesn’t work, so now I just kick myself up the bum when I feel a little low, put a bit of music on that I love, generally some Kip Moore, Keith Urban or such like and I feel my mood lifts. Now EDS is kicking my butt, the pain isn’t pleasant or the gastro, bladder or many other issues but after three years so far, things aren’t going to get better, in fact they are only going to get worse, so hey I tell you what EDS you aren’t going to hold me back anymore, I’m going to live my life to the fullest, until I fall over, yep I’ve decided … I will walk every hill, dance at every gig and laugh my head off because I’m sick of being the sick, sad girl.
So on reflection EDS I’m done with what you have taken from me, I’m taking it all back, I’m not sure how fully, but I’m going to stand up and be counted, I might stumble, I might need shoulders to lean on, I might need support but I WILL do this. Sod you EDS, you won’t beat me. I will travel the world, I will see my children get married, I will see my grandchildren be born, I will live my life to the fullest, most of all I will grow old with the love of my life ❤️. He has supported me through the hardest of times and shown me the greatest love, we are so lucky, no I am so lucky 💕💗💕