As you know if you read my blog I had surgery on my left shoulder a few years ago, I had managed to injure myself whilst playing Wheelchair Basketball and it never seemed to get better. Post surgery I have no real issues with my left arm/shoulder apart from I struggle to sleep on that side, so I soon became a right sided sleeper.
One morning I woke up to find I was in the most excruciating pain, it appeared that overnight I had sublaxed my shoulder, waking up it had relocated and was just super painful. I tried to keep it moving but this proved impossible and I was worried I would end up with another frozen shoulder and back down the same route as my left.
After a number of days I ended up in A&E, the pain from the injury just too much and as I was triaged the nurse commented “that is still out”. Off to x-ray and when I saw the doctor he was so confused, my shoulder was in position for the image but seemed “out” to the eye. I was sent home with a sling and told to rest, at this point last year I was still on fentanyl and I was struggling with pain relief as I felt I was on the maximum dose possible, I was told to try Oramorph to help with the acute pain, this did nothing for me.
I gave up and called my GP, I told them about the left and how the right was just as bad if not worse and could they send me back to my wonderful shoulder consultant. After a few weeks I was called up and asked to attend my first re-visit to the Stanmore.
Upon discussion with my Doctor it was decided that my shoulders, love to sit in an “out of joint” position and I would need some intense physio to try and improve my posture and make my joints hold in shape. So back to the fabulous physio department also at the Stanmore. Over several months I would fluctuate between doing great and then crashing down, normally because I had pushed myself too hard physically. Thankfully the team at the Stanmore, knew me of old, I am all boom or bust and I needed to pace more, I was asked to attend an OT appointment and we talked about pacing, mindfulness and sleep hygiene. This was a turning point for me I knew my sleeping position was still causing me issues, so with her help, I began to get some rest, the mindfulness despite not usually being my “thing” I found quite useful, so I began to use the tips and tricks she had provided.
I then started to exercise regularly to help my shoulders gain strength. This was and always had been a huge problem for me, Late last year they administered a steroid injection into the joint as I was still a bit all over the place with pain, two days after that, my pain diminished from a ten on the scale down to a two, it would just twinge abit if I overdid things. I think this is where I was able to start my rehab fully as I could lift my arms up again, I could brush my own hair, something hubby had been doing for me for months.
As of the end of April 2021 I am formally signed off from both the OT and PT departments and despite having had an MRI recently to see if there are any internal issues, next it will be to see my consultant to discuss the last steps of hypermobile shoulder joints.