EDS Awareness Month (day two) – Diagnosis

Dec 2014 – Long Hospital Admission

In 2013 I was diagnosed with PoTs after two years of head scratching by various specialists. Thankfully my neurologist picked up that my heart rate was unusually high for someone on beta blockers. He performed a poor mans TTT and felt there was an issue. After my full TTT and lots of questions about flexibility, it was decided I would need a rheumatologist to assess my condition. PoTs being one of the comorbidities of EDS.

Another year later and in 2014 I got my EDS diagnosis at the Stanmore Hospital, it was a worrying time because then I knew nothing about Ehlers Danlos but overtime I learnt more about how to manage the pain, brace my limbs if they were struggling and just understand fully why my body was struggling, on various levels.

Over the years I have to thank the London NHS hospital’s for the excellent care. Guys and St Thomas’ (dental and ENT) Charing Cross (neurology) Royal London (gastro) Stanmore (rheumatology and shoulder reconstruction) King’s (cardiology)

#myedschallenge

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out /  Change )

Google photo

You are commenting using your Google account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s